The Arc of Illinois
The Arc of Illinois is the state’s leading grassroots advocacy organization for people with intellectual and developmental disabilities and their families. Our mission is to empower individuals with disabilities to achieve full participation in community life through informed choices. With a strong network of self-advocates, families, providers, and allies, The Arc works to ensure that every person has the opportunity to live, learn, work, and thrive in the community.
For over 70 years, The Arc of Illinois has been advocating with people with disabilities, families, and community organizations to make Illinois a place where people with disabilities can live, work, learn, play, and love in communities across the state.
We believe people with disabilities should be full participants in community life, and we offer families and individuals the information, resources, family support, and training needed to reach their goals.
Samantha Alloway
Samantha Alloway is the Executive Director of The Arc of Illinois and a passionate, results-driven leader in disability rights, government relations, and strategic advocacy. She currently serves as Chair of the HFS Autism Work Group within the Medicaid Advisory Committee and was appointed by Illinois House Speaker Emanuel “Chris” Welch to the Illinois Commission on Poverty Elimination.
Samantha’s leadership is deeply rooted in personal experience. A mother of three, her advocacy took on new urgency when her middle son was diagnosed with autism at age three. That moment ignited her lifelong commitment to amplifying the voices of individuals with disabilities and transforming policy at both the state and federal levels to drive meaningful change.
One of her proudest moments this year was being quoted in Governor J.B. Pritzker’s Executive Order protecting Illinois from the creation of an autism registry - a moment that held deep personal significance. For Samantha, this wasn’t just policy, it was about protecting the rights, dignity, and future of her own child, and every family like hers across Illinois.
The Arc Events
News and Headlines
Congress passed a new law that made cuts to Medicaid, called Public Law 119-21. This law says that some adults with low income who get health coverage through Medicaid will need to report their work or community activities to the state in the future Public Law 119-21 creates a Medicaid community engagement requirement (often called […]

Presented by the Family Advocate Program & Family Matters
👉 Registration required: https://qr.link/uKWJ8e
/> 🕛 12:00–1:00 PM | Virtual
• January 30, 2026 – Key Questions in Secondary Transition Planning
• February 6, 2026 – Introduction to PUNS
• February 13, 2026 – Creative Transition Planning with Charting the LifeCourse
• February 20, 2026 – Medicaid Home & Community-Based Waiver Services
✔️ Attend one or all sessions
✔️ Free to attend

𝐒𝐡𝐚𝐫𝐞 𝐘𝐨𝐮𝐫 𝐕𝐨𝐢𝐜𝐞 𝐨𝐧 𝐭𝐡𝐞 𝐈𝐃𝐃 𝐒𝐲𝐬𝐭𝐞𝐦
Join us for an in-person Listening Session to share your experiences with the IDD system in Illinois. This session is hosted in collaboration with Helping Hand Children's Services and The Arc of Illinois.
👉 Register: https://qr.link/pkagsE
/> 🔎 View all Listening Sessions: https://qr.link/A5Gx6L
/> 🗓 Saturday, January 17, 2026
⏰ 11:00 AM – 12:30 PM
📍 Helping Hand Children’s Services
9649 West 55th Street | Countryside, IL 60525
🎤 Hosted by Samantha Alloway, Executive Director of The Arc of Illinois, and Bill Dwyer, President & CEO of Helping Hand Children’s Services.
💬 Your voice matters. Come share your story and help shape the future of the IDD system in Illinois.
